Monday, July 30, 2018

Maggie has left the building

By Tatjana van der Krabben

In 2013 co-writer and co-blogger Maggie McCarey and I finally met in person. We only got to spend a day and a half together, but we seemingly manipulated time and made at least a week’s worth of memories. She taught me about the rich history of both the Stockade Historic District, Schenectady, NY and her precious mountains where she had a lovely little house, introduced me to her family, gave me a tour around Amish country and introduced me to an Amish friend, and we even found time to relax on a bench on the banks of the Mohawk River, while looking out for otters. In the meantime ideas were flying around and we discussed the potential of a clinic specialized in treating lipedema that someone suggested to set up with us. Just like that.
That is how I will remember her: a warm personality, a big heart, a creative mind, unafraid of dreaming, embracing life. Mindful of the past, the present and the future.


LIPESE was Maggie’s brain child. The lipedema handbook, the blog, the Facebook support group: she was the driving force behind our every effort. She counseled countless people behind the scenes, advocated for several men with suspected lipedema who have an even harder time obtaining diagnosis and adequate help. But one facet of her versatile legacy can be found in her brutally honest and detailed blog posts in which she shared a wealth of knowledge and experience regarding her journey with lipedema.

Maggie, it has been an honor being your friend and working with you. You will be missed.

Maggie has passed on peacefully, but all too soon, on July 30, 2018.