By Tatjana van der Krabben
Every time people inquire which surgeon I saw or compliment me on the visible progress I made since my liposuction, while sharing their own plans, hopes and dreams in that direction, I tell them to tread lightly. My answer often surprises them, considering the obvious progress I made, but there are several reasons to urge for caution. It’s not all rainbows and song. Here are a few misconceptions that I wish to address.
“Liposuction is a cure for lipedema.”
This claim doesn’t come from the medical field per se, but patients sometimes say this. Liposuction is not a cure. It couldn’t be a cure. You don’t need to be a doctor to come to that conclusion: fat is extracted. No more, no less. Current insights have revealed it’s at least in part genetic, in part responding to hormones and in part to lifestyle. That’s what’s known at this point. With your full genetic package intact post-op and the same old hormones, you’ll be anything but cured…
“The fat that was removed, will not return.”
Technically true and misleading. The very fat that was extracted was disposed of post-op, obviously, in those canisters. So that fat will not come back to haunt you. However, your remaining fat cells can continue to swell. There’s also speculation new fat cells can be formed. Not that farfetched, considering your adipose tissue also contains stem cells that can theoretically become any type of cell. When regaining it will likely start in arms, belly and/or back, but eventually adipose mass can also increase on your legs. I met people who experienced that…
“Only this or that doctor can perform liposuction safely.”
There are absolutely dozens of skilled doctors out there who can do this safely with lipedema patients. I hear of - for me - new names on a regular basis. And those doctors in turn train other doctors, who…. Etc. It’s getting a less exclusive area of expertise, although the geographic spread is very uneven, with Germany as the absolute hotspot. Most doctors work for private clinics and have very good use for this claim. Presenting yourself as the absolute top of the bill is good advertising. It’s also fuelled by patients, providing raving reviews of their surgeon, leaving the impression that that particular surgeon is the (only) person to go see.
There are exceptions: many doctors refuse to perform liposuction in case of advanced lipedema and/or combined health issues. For these people it can seriously be slim pickings when searching for a surgeon.
“It’s safe.”
As safe as any sur-ge-ry. Don’t ever forget it’s a surgical procedure. The fact you’ll most likely be treated as an outpatient, doesn’t mean it’s not a surgery. They worked on the procedure to minimize risks, yes, but any surgery has its risks. This one too.
Also, since your primary won’t be involved, most likely you’ll have to look around for a surgeon yourself. It’s costly. I see people looking at expenses before track record. Do they check your medical history? Do they explain what it entails, what you can expect? Or are they smooth talking you into doing this? And what if there are complications post-op? Will your primary help you or refer you back to your surgeon, even if that’s in another country or across the country? Ask questions. Come prepared.
“The surgery will provide cosmetic improvement.”
Yes – no – maybe. It takes skill to work on a large lady. A lot of skill. I’ve seen uneven results. Also, only so much fat can be extracted. Sometimes choices are made to bring as much relief as possible to one particular area. Think proportions: smaller legs will make your behind, hips, belly possibly look larger. Or the surgery will finally get the proportions right for you - that could also happen. It’s all very individual. Finally, you could be left with loose or even sagging skin. Some doctors will focus more so on providing relief, others take more interest in the cosmetic side. So even the approach varies.
Super cosmetic results are usually only achieved in stage 1 lipedema or early stage 2 with good skin elasticity. Meaning: I don’t have a superb cosmetic result either. I’m happy, but my expectations were realistic. So while someone recently said I should look into a tummy tuck, I accept the somewhat loose skin. Especially since it seems a bit crazy to have a special liposuction procedure to spare the lymphatic system and next risk lymph damage through skin surgery. No, thank you.
“I will never have to wear compression again.”
That remains to be seen. If you needed compression pre-op you could still be needing compression after the healing period. It’s a wait and see kind of thing. Maybe you could do with lighter compression or could afford some cheating. Maybe you’re so lucky you can give up compression completely, but don’t assume that’s ‘normal’.
“After liposuction you will need to wear compression 24/7 for the rest of your life, or else your legs will start ‘growing’ again.”
Thankfully that’s not true! The first few weeks post-op (exact recommended duration varies per clinic) you will have to do so. By then you’ll be very, very happy to toss them aside for the night. Seriously! After that it will be limited to the daytime and after your healing period it’s a question mark what you’ll need. That’s very personal.
Your legs could ‘grow’ again. True. That has to do with how stable your lipedema is. More likely causes would be hormones and lifestyle. Not pointing the finger here! If your doctor doesn’t know (much) about lipedema, you could be getting poor medical advice on your lifestyle. You could be under the impression you’re doing everything right, while another approach would be far better in your case. It’s a common problem, I’m afraid… There are many misconceptions on that as well and contradicting recommendations, even among doctors and therapists specialized in lipedema.
“How much weight can I expect to lose?”
Don’t expect the scales to show a plummeting number. One liter of fat weighs about a pound and only so much will be extracted. Substantial weight loss is sometimes reported. Post-op improved mobility can sometimes do that for you.
What can you realistically expect?
Literature on the benefits of liposuction is widely available nowadays. That means already many have been successfully operated on. Improved looks and/or contours and improved mobility are mostly reported, although not necessarily in that order. The average patient generally reports progress, or great progress, even. Perception does play a part here, of course. The other factor is your specific health status. Are you a stage 1, 2 or 3? How active are you? How stable is your weight currently? What’s your plan to maintain the surgically obtained result?
Liposuction can be a shortcut to potentially great improvement. All else is a matter of perseverance, trial and error. That doesn’t make the alternative or traditional route less valid or less important, or mean that we should all look at liposuction. Not everybody can afford liposuction, is willing to try a surgical solution or is a suitable candidate. Plus, if you want to hang on to your results, you better come up with a lifestyle plan you will be able to stick with, if you haven’t already. There’s your perseverance, trial and error again.
In short: you could get a lot out of it, but you’re not out of the woods post-op. So tread lightly, please. I did! My surgically obtained result is still intact. That’s 3 years since the first surgery and 1 year since the last. That’s all effort, not dumb luck or an incorporated effect from the surgery. Sorry…
PS. Please don’t shoot the messenger…
Thanking the messenger, Tatjana - and not loading a gun! Thank you for sharing your experience and reminding that we need to proceed with caution. There are no miracle cures, and there are risks involved. I think the best advice is for everyone to do as much research as possible and not to expect miraculous results. All of us lippy ladies have faced enough disappointment in our lives -- so no one needs to set themselves up for further disappointment. Yes, in most cases, the surgery can help alleviate the symptoms -- but it is not and should not be used as an easy weight loss cure.
ReplyDeleteExcellent assessment Tatjana. As I have been filming many of the surgeons throughout Germany, I am aware that though there are transformations for many, and the surgery is very helpful and can restore mobility to some, it's important to be aware that ongoing health lifestyle is critical to maintenance. Thanks for your clarity.
ReplyDeleteHi Tatjana, I am agreed with you there is no miracle. Today’s more and more people are turning to liposuction to help achieve their aesthetic goals. Patients benefit both mentally and physically from liposuction. But still people have some misconception about liposuction. People think that liposuction removes cellulite, but this is not true. Cellulite develops when the connective tissues beneath the skin that shape fat contract and harden, resulting in areas where the skin in held down while other areas bulge out, which creates a lumpy cottage cheese appearance. Even it is advised by many Dr. that patients with poor skin elasticity that excessive removal of superficial fat can potentially worsen the appearance of cellulite.
ReplyDeleteHi, just joined. Re compression garments. My experience of compression garments is that using moderate to firm compression garments and limb sleeve during a period of weight loss minimizes stretch marks, can even out cellutlite, and shrink varicose veins. Stockinette sleeves are effective cosmetically, (lets face it these garments can be ugly) ,These can also be used as a protective layer for the more expensive elstic compression sleeve underneath. I use elstic limb sleeves which can be easily concealed under (loose) , clothing or light, patterned open weave hose. The skin on my lower legs has turned to 'normal'. I continue to use compression limb sleeves during the active parts of the day. I am now down to being able to take them off at night.Elastic limb sleeves can also work for upper arm compression, to slim and discourage swelling, and encourage skin firming. I wear compression sleeves especially in hot weather to control lower limb odema.Successful lipodema control routines have to include a larger than 'normal' and more persistant exercise regime. Exercise activities built into daily routines are most likely to succeed over time. Low impact exercises -walking cycling, regular gentle exercize on a home gym, swimming. I find the home gym good for pain management, possibly because the pain was poor circulation related and using the exergym increased the circulation(?).
DeleteAt the beginning of this regime the most rapid change was over 3 weeks when I had mainly (substantial) soups, water, fruit and veges, plus a version of 'The Queen of Hungary formula', in an effort to balance my digestive system. Three weeks of chronic cystisis dissappeared in 2 days. After researching on Google I realised that I had not had any bread or wheat based foods. I became alarmed at the rapid wieght loss and started to wear compression garments, especially during physical exertion. I have fewer allergies and my immune system is much more functional than it was. A large part of the key to managing lipodema is avoiding gluten, especially wheat and some other grains too- go easy on the rice too. After an extended period of abstainence, baked goods can be indulged MINUTELY- enough to be polite at birthdays and family event BUT NO MORE! Lipodema is a stubborn condition that requires patience and perseverance to manage. All three components of the reime have to be engaged in unison for best results. Best sucess for stage 1 and 2 lipodema. Regular wraps and hyrdotherapy are good supportive therapy, as well as lymphatic massage. Think I've said enough now, will be following with interest. Cheers.
Sounds like you're doing great for yourself, dandelionchain. Good for you!
DeleteStaying away from wheat here as well.
Couldn't agree more, dandelionchain. On each point. Gluten avoidance and its no-exception necessity, imperative compression during physical exercising (and drainage afterwards)... Despite the stubbornness of lipodema, this lifestyle bring definitely results if you do it with enthusiasm - and for my part it came on the way !
DeleteWow.......what a great article and so informative.....thank you
ReplyDeleteThank you tatjana. It has been almost a month since my arm lipos and my leg lipos were last summer.
ReplyDeleteI suffered severe lipedema pain and inflammation before lipo. Now i have no pain but a tiny bit of inflammation. And my legs still may swell if i stand up for hours. Even though i wear compression during the day. Lipo is not a cure for long standing lipedema. But it can relieve the most severe symptoms. My surgeon has treated thousands of lipedema patients over the last 18 years and only two have had a return of lipedema. They both starved themselves at times. Lipo will not cause weight loss. Only eating sensibly and not starving ourselves will induce weight loss in those lipedema patients who need to lose weight.
Sounds like you found your plan to work with and experience the benefits. Good for you!
DeleteAlthough I know for a fact lipedema fat returns more often than that. Unfortunately. Many can't afford more treatment or go to a cheaper place next time around or are too disappointed to try again. Sometimes it's lifestyle, sometimes hormones (pregnancy, menopause) that rains on your parade.
Thank you tatjana. I echo your sentiments as to lipedema and choosing a surgeon wisely. But there are some lippy ladies who are not large who cannot undergo standard european tumescent lipo because of comorbidities. I am delighted that i found great relief from pain with my surgeon. And good skin retraction despite my age and lack of skn elasticity.
ReplyDeletePlease don't shoot the ignorant...I don't know much about Lipo, as I just diagnosed with Lipedema. How come you had 4 surgeries as opposed to 1?
ReplyDeleteI have lipedema from my ankles to my hips and lower abdomen, as well as from my shoulders to my wrists. There is no way to all of that can be addressed safely in only one surgery. They do it in parts. How it will be divided and how much in one go is considered safe varies per person (how much will be extracted) but also on the protocol the surgeon follows/developed.
ReplyDeleteGrains and sugar definitely make my lipedema worse. When I stay clear of those two things I have almost no pain or swelling. Also processed foods can cause it to flare up and add a lot of fluid. I am considering tumescent liposuction
ReplyDeleteTo be thorough: there now is a specialist claiming it serves as a cure. Dr. Cornely, a German liposuction specialist has used the c-word with respect to liposuction in case of lipedema.
ReplyDeleteHowever, I remain sceptical, since liposuction does not effect genetics, or lifestyle, or hormonal balance which are all believed to affect lipedema to some extend.
Thank you, you touched on many of the reasons I do not current consider liposuction as an option for me. I agree with not a cure, how can we have cure for a condition when the cause is not known??? I have had lipedema w/ lymphedema well since I was born, but diagnosed for 10+ years and wear daily compression. I have adapted, I do not feel the money and risk for liposuction is worth it since yep I'd still need to wear compression. I also think at my stage and size there is no way to remove it "all" or even enough to make a difference. I have youth on my side I guess, I do not physically feel worse enough to take the risk, and yes every surgery has a RISK, I already had brachioplasty 2x by a caring doctor who only removed skin, not tissue but of course my arms have grown since and even the mere incision could be the culprit, just not enough known.
ReplyDeleteHi and thank you for this interesting article. I am new to this. My daughter is 16 and has recently been diagnosed with lipodema. She is in early stages - holds weight/fluid in her upper legs and a little round tummy and arms. It is very difficult to get an understanding of this whole thing from doctors and/or info/blogs on internet. I am trying to understand how to contain the situation for my daughter as she is young and still very mobile etc and I don't want it to progress. Obviously my daughter is too young for liposuction but some of the things you mentioned in your blog I think are relevant to her/us. I wonder whether you could please help me with a couple of questions:
ReplyDeleteMy daughter seems to retain fluid in her face and I see it sometimes in her forearms. Her legs may be and probably are affected but I can't tell and don't want to analyse as I have to tread carefully. Is this retention normal. I haven't heard of anyone talking about it. Possible she has something else with Lipodema.
She has been told by the endocrinologist not to exceed 1,400 calories per day (her resting metabolic rate) in order to keep her weight constant. ie you cannot burn fat when you have Lipodema so don't give your body extra food/fat for it to burn. Doc is not worried about type of food just calories. My daughter does this to a point but it is difficult to stick to this. I don't hear other people doing this.
It was suggested that my daughter have the massage and bandaging treatment for 3 weeks and then maintain with massage. She is not keen on this but I worry that the toxins remain in her body and will make her situation worse.
She avoids red meat and most processed carbs.
I guess I am asking you these things cause you mentioned in your article that although you have had the surgery you have to work on maintaining, which you have done for 3 years. Possibly my daughter can do the same with out this calorie restriction.
It is advantages that daughter is in a position where she is young and still in the early stages but most of the information out there is for people who are at fairly advanced stages. I have not come across anyone young having it and not sure how they cope and if they manage to keep it at bay.
Any information would be so amazing.
Thanks you
Hi there,
DeleteSorry to hear your daughter has lipedema. Fluid retention is not uncommon. I think for massage you mean MLD? Thankfully there are also other ways to stimulate the lymph, like exercise, yoga and Self Lymphatic Drainage and dry brushing.
As for diet: no research has been conducted. Counting calories we personally don't believe in. If that worked we were skinny. Another approach would be looking at WHAT you eat, the types of food. Lipedema is accumulated inflammation in the affected limbs. Wheat, sugar and processed foods are believed to cause inflammation. Dr. Herbst, a specialist brings forward the same points. The exact outline of the diet is personal. Lipedema appears to coincide with personal sensitivities to food. Some can't even eat fruit and can't process fructose. Some can still process a decent amount of carbs, others very little. But, there is no known and tested diet and looking at our personal differences I doubt there ever will be just one diet.
Popular among patients are RAD diet by dr, Herbst, Low Carb High Fat, Atkins, Paleo. No wheat, no sugar and little processed foods is what they have in common.
Good luck with everything!
Thanks for posting, Tatjana, such a detailed and honest account of what went on with your liposuction. There are so many factors to consider. I'm glad things have worked out well for you so far.
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ReplyDeleteThe advanced stages of lipedema are very challenging. I hope you find the help you need.
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